Tuesday, March 27, 2018

Disability Advocacy and Twitter: Why Use It?

Introduction

#CripTheVote is an online campaign that uses Twitter to have conversations about voting and disability issues. We also have blog posts and a Facebook group where we publish information about our upcoming events and news. 
Social media is term that’s used a lot–you might hear about Facebook, YouTube, Snapchat, Instagram as examples. Broadly speaking, social media are websites or apps that allow users to post information (text, photos, audio) and share it to the public or within a specific network of friends/colleagues. 
This article will give a describe the pros and cons of using a social media platform such as Twitter and how to get started for first-time users.

Pros and Cons

Here are a few pros of using social media if you are a person with a disability and interested in disability issues:
  • Most accounts are free*
  • You can connect and find others with similar interests from all over the world
  • You can learn about things that are happening in real-time 
  • You can learn about things that challenge you and make you think differently about disability issues  
  • You can share your thoughts widely to the public and they can influence and impact other people
  • It can help build relationships, both in-person and online
  • People can report/document what’s happening around them
It’s very trendy and can be fun but social media not everyone’s cup of tea. And that’s ok! Here are a few cons and limitations to social media:
  • Although technically free*, some social media sites have ownership of the content you post, collect data on your usage, and feature advertising that you cannot opt out of
  • Not everyone has access to the Internet, a smartphone, or a computer 
  • Not everyone is comfortable learning how to use social media
  • Not everyone likes talking with people you can’t see face-to-face
  • It can be a huge “time suck,” taking you away from other things important to your life
  • Like “real life,” there is the potential for bullying and harassment on social media which can be a serious problem
  • Accessibility issues continue to create barriers to some users with disabilities
Why does #CripTheVote use Social Media?

With all the cons and drawbacks to using social media, we decided that #CripTheVote will be an online campaign that takes place primarily on Twitter for several reasons:
  • It takes a lot of resources and energy to organize in-person events 
  • We can have conversations with a wide swath of people with disabilities by using the #CripTheVote hashtag and having organized Twitter chats on specific issues
  • It’s relatively easy to use social media and doesn’t require any special training or preparation (just practice!)
  • For three people who don’t do this for a living or with any professional connections to the political world, Twitter is one way to insert ourselves into the broader policy/election discussion without any interference

We understand that our campaign will not reach everyone, but there are many other campaigns that are not online with similar goals. There’s something for everyone and there’s no wrong way to be an advocate.

What is a “Twitter Chat?” And while we’re at it, what’s a “hashtag?”
A Twitter Chat is a public discussion that uses a hashtag as a virtual meeting point on twitter. A hashtag is a way of making tweets more easily searchable. By using the hashtag (in this case #CripTheVote) one can find all of the tweets on a particular subject in one place by either clicking on the hashtag or using twitter’s search function. For an example of what a Twitter chat looks like, check out this example by Ruti Regan. It’s very helpful explaining the elements of a typical Twitter chat:https://storify.com/RutiRegan/examplechat
For more about #CripTheVote and frequently asked questions: http://disabilitythinking.com/faqs
To give you a sense of the kinds of Twitter chats hosted by Gregg Beratan, Andrew Pulrang and Alice Wong (the co-partners of #CripTheVote) check out this recent link that summarizes their recent chat on voter accessibility:
You can find all of our chats here:
Getting Started on Twitter

If you are curious and want to try Twitter for the first time, the first thing you need is an email address. Here are a few links that’ll help you get set up:
This 2012 article also gives useful tips on using Twitter for beginners: http://mashable.com/2012/06/05/twitter-for-beginners/#0tlbAHJfqEq7
You can be as involved or uninvolved on social media. Here are some things you can do with Twitter:
  • Follow different organizations and people and read their tweets
  • Send tweets to specific individuals when you use their Twitter handle (that is, their username/account)
  • Re-tweet (share) any tweets that you like
  • Look at various conversations happening in popular culture or current events such as #BlackLivesMatter or #AbleismExists
  • Tweet links of articles or websites that you like
  • Tweet messages or images you want to share
  • And much more
Checking out #CripTheVote without Twitter

You don’t need a Twitter account if you want to follow the conversation happening in real-time. At any time, you can check this link: http://twubs.com/CripTheVote. This link will show all the tweets that use the CripTheVote hashtag and you can scroll up and down to read all the comments.


Screenshot from TWUBS.com that shows the live feed of #CripTheVote tweets on Twitter happening in real-time
Screenshot from TWUBS.com that shows the live feed of #CripTheVote tweets on Twitter happening in real-time
Logging in to Twitter: App for smartphone or desktop

If you use a smartphone, you’ll need to download the Twitter app. This is what you’ll see from an iPhone when you go to the App Store and search for “Twitter”:



Screenshot of the App Store on an iPhone showing the Twitter app
Screenshot of the App Store on an iPhone showing the Twitter app

If you want to tweet from your computer, you can log in here, at https://twitter.com/


Screenshot of a desktop computer open to the main page for Twitter.com
Screenshot of a desktop computer open to the main page for Twitter.com 

Once you log in with the account that you created, you will see this (example of Alice’s Twitter account on her computer):


Screenshot of the main page of @SFdirewolf's account on Twitter
Screenshot of the main page of @SFdirewolf’s account on Twitter
Read the various tweets people are sharing. 

In the search box at the upper right side of the Twitter website or app, type a hashtag, a name, a keyword of whatever you’re looking for. If you enter #CripTheVote, you’ll see this page:


Screenshot showing the Top Tweets tab for tweets using the #CripTheVote hashtag on Twitter
Screenshot showing the Top Tweets tab for tweets using the #CripTheVote hashtag on Twitter

You can Read ‘Top’ tweets that are most popular and shared. ‘Live’ tweets show the most recent ones, and other tabs that with News, Photos, and Videos.
Tweeting with the #CripTheVote hashtag: Selfie edition

Your mission, if you choose to accept it, is to tweet a photo or message using the #CripTheVote hashtag. Totally up to you, but it might be a fun first-step in connecting with people with disabilities who are interested in voting and current events.



Visibility of people with disabilities is important. Selfies/photos are a wonderful way to share a brief message and say, “Hey, I’m here and this is what matters to me!” Saying who you are and what you care about is a form of advocacy that can lead to a broader community.



Take a photo!

Photos or short videos can make powerful statements. If you’re at the Voting Summit, feel free to complete the sentence, “I vote because…” and take a photo of you with a sign that will be available at the event (or use any piece of paper).
You can take one during the Yo! Voting Summit or afterward. You can use the Twitter app or their desktop version.  Here is Alice’s photo from her iPhone:


Image of an Asian American woman in a wheelchair holding a white piece of paper that says, "I Vote because...the Medicaid poverty trap needs to end."
Image of an Asian American woman in a wheelchair holding a white piece of paper that says, “I Vote because…the Medicaid poverty trap needs to end.”
Tweet Your Photo with a Message!

This is a step-by-step for iPhone users. It might be different for Android or other phones.
Step 1: Open your Photos on your phone


Screenshot of an iPhone's Photo library with an image of an Asian American woman in a wheelchair holding a white piece of paper that says, "I Vote because...the Medicaid poverty trap needs to end."
Screenshot of an iPhone’s Photo library with an image of an Asian American woman in a wheelchair holding a white piece of paper that says, “I Vote because…the Medicaid poverty trap needs to end.”
Step 2: Select the photo you want to post on Twitter by clicking on it

Screenshot of an iPhone's photo app with one image selected among a row of other photos. Below are options to share the image on various apps, via text, email and other sites.
Screenshot of an iPhone’s photo app with one image selected among a row of other photos. Below are options to share the image on various apps, via text, email and other sites.
Step 3: Below your selected photo, you can see the options you have for sharing your photo. Swipe left or right until you see the Twitter icon and select it.

Screenshot of an iPhone's photo app with one image selected among a row of other photos. Below are options to share the image on various apps, including Twitter.
Screenshot of an iPhone’s photo app with one image selected among a row of other photos. Below are options to share the image on various apps, including Twitter.

Step 4: A small window will open that is connected to your Twitter account (and app). Type your message. Remember, you can only type a message no more than 140 characters (including spaces). Be sure to use the #CripTheVote hashtag


Screenshot of an iPhone that selected a photo to post on Twitter. A small window appears with a keyboard underneath
Screenshot of an iPhone that selected a photo to post on Twitter. A small window appears with a keyboard underneath

Step 5: After you type your message, click ‘Post’ on the upper right-hand corner of the window. Below is an example of Alice’s photo. She typed the same message on her sign so it’s accessible to all users.


Screenshot of a window with text written in a Tweet that says partially, "#Medicaid poverty trap needs to end." Below are a series of hashtags: #crip #CripTheVote #CrippleTeam #CrippingTheMighty
Screenshot of a window with text written in a Tweet that says partially, “#Medicaid poverty trap needs to end.” Below are a series of hashtags: #crip #CripTheVote #CrippleTeam #CrippingTheMighty

When you type your message, sometimes you’ll see different hashtags that match the one you’re about to type. For example, when Alice started typing the hashtag, #CripTheVote appeared in a list. You can select it without typing the whole thing.
Step 6: This is what the tweet looks like that’s ready to post. Click “Post.”


Screenshot of a window with a Tweet that says, "I Vote because...the Medicaid poverty trap needs to end. #CripTheVote" Next to it is a photo attached w/ the image of an Asian American woman in a wheelchair holding a white piece of paper with the same message.
Screenshot of a window with a Tweet that says, “I Vote because…the Medicaid poverty trap needs to end. #CripTheVote” Next to it is a photo attached w/ the image of an Asian American woman in a wheelchair holding a white piece of paper with the same message.

Step 7: After clicking “Post,” open your Twitter app on your phone.


Screenshot of an iPhone with a six rows of various icons indicating apps and other functions of a smartphone.
Screenshot of an iPhone with a six rows of various icons indicating apps and other functions of a smartphone.

Step 8: This is what it looks like from Alice’s Twitter account. Now it is public for all to see. If you click on the tweet, you can see the entire image.


Screenshot of a Twitter app that's open showing a tweet by Alice Wong, @SFdirewolf Screenshot of a window with text written that says "I vote because the #Medicaid poverty trap needs to end #CripTheVote" Including an photo of her holding a sign with the same text.
Screenshot of a Twitter app that’s open showing a tweet by Alice Wong, @SFdirewolf Screenshot of a window with text written that says “I vote because the #Medicaid poverty trap needs to end #CripTheVote” Including an photo of her holding a sign with the same text.

If you’re feeling really ambitious, you can now add descriptions (alternative text) to any images you post using Twitter: https://support.twitter.com/articles/20174660
Instagram

If you’re more into Instagram, you can do the same thing and share on Facebook or Flickr at the same time. The steps are similar–just follow these step-by-step images.
Step 1: Open Instagram


Screenshot of an Instagram app for Alice Wong, @alicatsamurai. Below are small images of her instagram images.
Screenshot of an Instagram app for Alice Wong, @alicatsamurai. Below are small images of her instagram images.

Step 2: Select the middle button in blue at the bottom of the screen. Select an image from your photo library (from your phone).


Screenshot of Instagram with an image open from the phone's Camera Roll showing a photo of an Asian American woman in a wheelchair holding a white piece of paper that says, "I Vote because...the Medicaid poverty trap needs to end."
Screenshot of Instagram with an image open from the phone’s Camera Roll showing a photo of an Asian American woman in a wheelchair holding a white piece of paper that says, “I Vote because…the Medicaid poverty trap needs to end.”
Step 3: Type your caption. Instagram is great because you can write longer messages. Don’t forget the hashtag!!

Screenshot of Instagram with a message window open and a small keyboard below. There's a photo of an Asian American woman in a wheelchair holding a white piece of paper. The caption for the Instagram post: "I Vote because...the Medicaid poverty trap needs to end. #CripTheVote"
Screenshot of Instagram with a message window open and a small keyboard below. There’s a photo of an Asian American woman in a wheelchair holding a white piece of paper. The caption for the Instagram post: “I Vote because…the Medicaid poverty trap needs to end. #CripTheVote”

You can tag your friends on Instagram or post the same image and caption to other social media sites connected that you might use such as Facebook, Twitter, Tumblr. 
Note: I don’t select Twitter when I use Instagram because the image doesn’t appear on Twitter, just a link back to Instagram.
Step 4: When you’re done, click “Share.”


Instagram window that says, Share To. Below is the image, the caption, and several options of tagging people, adding location, and posting directly to Facebook, Twitter, Tumblr, or Flicker. Below is a Share button.
Instagram window that says, Share To. Below is the image, the caption, and several options of tagging people, adding location, and posting directly to Facebook, Twitter, Tumblr, or Flicker. Below is a Share button.
Ta-da!

Here’s the same message I tweeted on Twitter, but this time on Instagram using the same hashtag. No matter what social media site you use, people can find similar posts on under this keyword.


Screenshot of a recent Instagram post by user alicatsamurai showing a photo of an Asian American woman in a wheelchair holding a white piece of paper that says, "I Vote because...the Medicaid poverty trap needs to end." The caption below the message has the same text in the sign.
Screenshot of a recent Instagram post by user alicatsamurai showing a photo of an Asian American woman in a wheelchair holding a white piece of paper that says, “I Vote because…the Medicaid poverty trap needs to end.” The caption below the message has the same text in the sign.

Conclusion

Have fun with social media if you already use it or are interested in trying it! There’s no wrong way to do it and you’ll get the hang of it eventually. If you’re shy, you can post message without a photo. 
It’s up to you how much you want to reveal. You are in control.
Don’t Be a Stranger!

We’d love to hear from you! Feel free to email us: DisabilityVisibilityProject@gmail.com
Or if you’re on Twitter, you can follow Andrew, Gregg, and Alice:

Sunday, February 25, 2018

#CripTheVote Chat: Midterm Elections Preview

#CripTheVote Twitter Chat Midterm Elections Preview, March 4, 2018, 4 pm Pacific / 7 pm Eastern. Details: http://cripthevote.blogspot.com
The U.S. Midterm Elections will be on November 6, 2018. All 435 seats in the U.S. House of Representatives and 34 of the 100 seats in the U.S. Senate will be up for election, as well as 39 state and territorial governorships, and thousands of state legislature seats and local elected offices.

The purpose of this chat is to take a first look at the Midterm Elections. What are the key races this year? Which disability issues are most in play? Which candidates have disability issues in their platforms? What are their voting records on disability issues? Which candidates identify as disabled or D/deaf? Our hope is that in this chat we can pool the information we have and begin to build a detailed picture of the 2018 Midterms from a distinctly disability perspective.

Information on the 2018 Midterm Elections





How to Participate

Follow @GreggBeratan @AndrewPulrang @DisVisibility. When it’s time, search #CripTheVote on Twitter for the series of live tweets under the ‘Latest’ tab for the full conversation. 

If you don’t use Twitter, you can follow along in real time here: http://twubs.com/CripTheVote. If you might be overwhelmed by the volume of tweets and only want to see the chat’s questions so you can respond to them, check @AndrewPulrang’s account.

Check out this explanation of how to participate in a Twitter chat by Ruti Regan: https://storify.com/RutiRegan/examplechat

Check out this captioned ASL explanation of how to participate in a chat by @behearddc.

Introductory Tweets and Questions for the Chat:

Welcome to the #CripTheVote Midterm Elections Preview chat! Please remember to use the #CripTheVote hashtag when you tweet. If you respond to a question such as Q1, your tweet should follow this format: “A1 [your message] #CripTheVote”

Q1: What are your initial thoughts about the upcoming Midterm Elections? Are there any specific outcomes you are hoping for? #CripTheVote

Q2: Name some key disability issues you believe candidates for office should know about and take positions on. Think not only about national office, but also state and local offices. #CripTheVote

Q3: What is your approach if you like a candidate’s other positions, or really despise their opponent, but they have a poor voting record or positions on disability issues? #CripTheVote

Q4: How can we help otherwise “good” candidates develop more sound, comprehensive disability policy positions? #CripTheVote

Q5: Are there specific disability issues you consider “deal breakers” or “litmus tests” for whether or not you can support / vote for a candidate? What is your take on “single-issue” voting? #CripTheVote

Q6: Please tell us about any candidates with disabilities you know of who are running for office in 2018. If you can, include their names, party affiliations, the offices they are running for, and their Twitter handles. #CripTheVote

Q7: Tell us about candidates running in 2018, disabled or not, that you will be watching closely because of their positions or records on disability issues. #CripTheVote

Q8: What can we all do to press candidates to address disability issues, both individually and through coordinated efforts like #CripTheVote and #RevUp?

Thank you for joining the #CripTheVote chat previewing the midterm elections. Please continue the convo and join us on 4/8 for our next chat reviewing the results from our online survey. 

There is still time to participate in the 2018 #CripTheVote survey on disability issues. We want to hear from you! There are 2 ways to participate. The online survey, using SurveyMonkey:

Saturday, February 3, 2018

Returning to the Women’s March in 2018 Committed to Political Change and Accessible Marches

By Charis Hill

In 2017, I joined the Women’s March on Sacramento in an old, large, clunky, medical-grade, standard-issue wheelchair I borrowed from my church. At the time my options were to use this wheelchair or stay home. Thankfully, since then I’ve acquired my very own custom chair!

My experience in 2017 was better than I expected considering it was the third time I had ever used a wheelchair. I was grateful to participate without my entire focus on the pain and fatigue that comes with walking and standing too long. I carried a two-sided sign that read, “Cure Ankylosing Spondylitis” and “Healthcare keeps this pussy alive.”

Using the chair, I had expected to constantly fight my way through crowds and keep people from sidestepping in front of me or falling on my lap. I was pleasantly surprised. People were polite and eager to make sure I could freely move. I didn’t feel like an object they tried to avoid – people saw me first, and the chair second. This was refreshing. And, even though I could not make it through the dense crowd to the ADA area up front, an organizer moving against the crowd wove her way sideways to reach me to tell me about its existence, if I could make it there.

Overall, my experience was pleasant because of the humanity of the attendees at the march, rather than the organization and design of the march itself. I was simply happy to be able to participate at all.

I was absolutely on board to attend any future Women’s Marches. Humanity had been restored.

Then, after a year of using my own wheelchair I was able to look back at the experience and see the accessibility gaps I wasn’t even aware of then. For one, I wasn’t aware there was an ADA area until the middle of the march. Second, there were no signs directing people such areas. Third, marketing leading up to the event hadn’t included accessibility information. 

And I noticed a similar pattern leading up to the 2018 march. The website didn’t have any accessibility information.

I spoke up about this at a listening session with the 2018 organizers a couple weeks before the March. I added that people with disabilities are one of the most marginalized and vulnerable groups in America and we often feel unheard and invisible. Inclusivity is paramount to our ability to thrive. I said that I would be happy to share more at another time.

In response I was asked to do a walk-through of the rally setup and offer suggestions.

And I was asked to be a speaker at the rally.

Fearing I was the only disabled voice being heard, I couldn’t refuse. If my speaking up could shed some light on even the smallest missed opportunities to make the march and rally more accessible, then I would make a difference. All the while I knew this approach needed to be more robust the following year; after all, I am magnificently ill-equipped to represent every accessibility need.

All that said, my experience as a speaker for the rally was great! There are things I wished I could have done, like participate in the march itself, but I had to choose speaking over marching this year. My health would not have allowed for both.

Here is a link to a video of my speech as well as the transcript: Click here for the video.

Lastly, I do want to speak to accessibility for marches in general.

I have heard a lot about how the Women’s Marches have a lot of work to do to be more actively welcoming and inclusive of people with disabilities. I think this claim can be made of almost any march for any cause, not just the Women’s March movement. I believe the Women’s Marches are taking the heat directly as a result of being the new kid on the block. I see this as an opportunity to use the Women’s Marches as a pilot program to remove the kinks and set an accessibility standard and protocol for all future marches to follow.

We have miles to go for full accessibility and inclusion, but we are in this moment now and must do what is in our power to hurry up change. And I am rolling with it.

---------------

Image description: A photograph from the waist-up of a light-skinned person wearing a grey bucket hat and grey shirt that says "Health Care Voter." The person's face is turned to the left as if they are looking into the distance. In the background is the white dome of the California State Capitol Building.
About

Charis Hill is a chronic disease advocate, writer, and model who lives with Ankylosing Spondylitis (AS), Major Depressive Disorder, Anxiety and Post-Traumatic Stress Disorder. She graduated in 2009 from Meredith College, Magna Cum Laude, with a BA in Sociology and minors in Psychology and Women’s Studies. She is also a self-titled Episcopal Geek and gives really good hugs. When able, she enjoys sewing, cooking (she’s vegan), gardening, soccer, running, and her two cats Dora and Juno.

Charis’ story has been featured in dozens of publications, including Arthritis Today Magazine, Mother Jones, and CNBC. She has spoken on healthcare panels, with pharmaceutical organizations, and in legislative hearings. In 2014, Charis was awarded the Progress in Policy Award by the Arthritis Foundation, Pacific Region for her efforts in Statewide and National legislative advocacy efforts (watch her in action).  She leads the Sacramento area Spondylitis Association of America Support Group, is on the CreakyJoints Patient Council, and is a speaker with the Stop Stigma Sacramento Speaker’s Bureau. Charis is additionally a member of the Standing Committee of the Episcopal Diocese of Northern California and will be a Deputy to the 2018 General Convention of the Episcopal Church in Austin, Texas.