Friday, January 5, 2018

1/21 Twitter Chat: Chronic Pain and Opioids

Image description: graphic with a bright yellow background with black text that reads, "#CripTheVote Twitter Chat, Chronic Pain and Opioids, January 21, 2018, 4 pm Pacific/ 7 pm Eastern, Guest Hosts: @msdeonb @alexhaagaard, Details: http://cripthevote.blogspot.com/. On the left is an illustration of a capsule. On the right is an illustration of a first-aid kit.

#CripTheVote Twitter Chat

Chronic Pain and Opioids
Sunday, January 21, 2018
4 pm Pacific / 7 pm Eastern

The co-partners of #CripTheVote, Gregg Beratan, Andrew Pulrang, and Alice Wong, are delighted to have guest hosts Alecia Deon and Alex Haagaard join us for a discussion on chronic pain and opioids.

How to Participate


When it’s time, search #CripTheVote on Twitter for the series of live tweets under the ‘Latest’ tab for the full conversation.

If you don’t use Twitter, you can follow along in real time here: http://twubs.com/CripTheVote
If you might be overwhelmed by the volume of tweets and only want to see the chat’s questions so you can respond to them, check @DisVisibility’s account. Each question will tweeted 5-6 minutes apart.

Check out this explanation of how to participate in a Twitter chat by Ruti Regan: https://storify.com/RutiRegan/examplechat

Check out this captioned ASL explanation of how to participate in a chat by @behearddc

https://www.facebook.com/HEARDDC/videos/1181213075257528/

Introductory Tweets and Questions


Welcome to the #CripTheVote chat on chronic pain and opioids. We are excited to have guest hosts @msdeonb @alexhaagaard with us today!

Please remember to use the #CripTheVote hashtag when you tweet. If you respond to a question such as Q1, your tweet should follow this format: “A1 [your message] #CripTheVote”

Background: Opioids are substances that act on opioid receptors to produce morphine-like effects. Medically they are primarily used for pain relief, including anesthesia. https://www.drugabuse.gov/drugs-abuse/opioids

Note: During this chat we will focus on the usage of prescription opioids for pain relief, not for recreational purposes.

Q1 Happy New Year! Community check-in. How are you doing and what are your expectations/hopes related to disability issues & politics this year? #CripTheVote  

Q2 For those who are comfortable sharing, what are the most misunderstood aspects of living with chronic pain? What are your thoughts on the media coverage of opioids and chronic pain?

Q3 People take opioids for all sorts of reasons. Regarding pain relief, please share your experiences with opioids. What is the difference between chronic pain and other types of pain? What myths, stigmas, criminalization, and surveillance are associated with opioid usage? #CripTheVote

FYI: gender and race major factors in chronic pain treatment disparities by healthcare providers. 2 articles from @Rewire_News

States and pharmacies in the US are taking steps to curb the abuse of prescription opioids by limiting the amount of pills per script or the # of prescriptions a doctor can give.

Q4 How will these restrictions affect patients, sick people, chronically ill people & disabled people? What else have you observed in your local communities and in other countries? #CripTheVote

Q5 What are the consequences of stricter limits on prescription opioids and doctors shifting toward other forms of pain relief? #CripTheVote

Q6 There's also the concept of 'pain acceptance.' Doctors asking patients to live with a certain level of pain for the rest of their lives. What do you think of this idea? Is it acceptable to you? For more: https://www.vox.com/2017/11/13/16387320/pain-acceptance-opioid-epidemic-chronic-pain-treatment #CripTheVote

The current Administration declared the opioid epidemic a public health emergency in the fall of 2017. https://www.nytimes.com/2017/10/26/us/politics/trump-opioid-crisis.html  #CripTheVote

Q7 Clearly, there is a racial and class disparity (among others) in the way the US govt treats substance abuse. What are the main differences you’ve observed with the current ‘war’ against opioids and the ‘war on drugs’ in the 1980s? What differences have you noticed in the media coverage? #CripTheVote

Q8 What are some policy changes you would like to see that would support people who need treatment for addiction and protects access to prescription opioids to those who need it?

This concludes the #CripTheVote chat on chronic pain and opioids. Thank you to our guest hosts @msdeonb @alexhaagaard!

Please keep the convo going. A Storify of this #CripTheVote chat will be up shortly. Yes, we are aware Storify will be ending in May 2018.

You can find updates & info about our future chats here: http://cripthevote.blogspot.com/
Thanks again!!

Sunday, December 31, 2017

2017: Year in Review

To say 2017 was an interesting and tumultuous year would be an understatement. This year we have seen the disability community under attack, defending against various legislation, policies, and actions by the current administration. From multiple attempts to repeal the ACA and cut Medicaid, to HR 620 … a bill that would weaken the ADA, to the tax bill, and the removal of disability rights guidance documents by the Department of Justice, people with disabilities are watching, speaking out, and fighting back.

In #CripTheVote’s second year, we were involved in the following activities:

-Posted a call for Medicaid stories by people with disabilities and published them online.

-Shared stories of activism by disabled people with advice for first-timers, definition of activism, and reflections on the relationship between identity and activism.

-Supported and welcomed a new offshoot of #CripTheVote in the lead up to the 2017 General Election in the UK: #CripTheVoteUK

-Published 3 guest blog posts


-Hosted 11 chats


-Started a series of spotlight chats with disabled candidates:


Including the spotlight chats, #CripTheVote has hosted 29 Twitter chats since our formation in 2016. All of this would not be possible without you. Whether you participated in a chat, guest hosted with us, or used the hashtag to share your stories and information, we are thankful for your involvement. You keep us motivated as we head toward the future. 

Looking forward, we plan to continue organizing chats featuring guest hosts from our community featuring issues that we care about. We also plan on identifying and highlighting disabled candidates who are running for office in 2018.

Please join us on January 21, 2018 as we host a chat on chronic pain and opioids with guest hosts Alecia Deon and Alex Haagaard. Details coming soon: https://www.facebook.com/events/1794096123936515??ti=ia

Be on the lookout for our second Disability Issues Survey in early 2018! Check out the results of the 2016 survey here: http://cripthevote.blogspot.com/p/2016-survey.html

Feel free to contact us if you have any suggestions or feedback: cripthevote@gmail.com. We’re also still hoping to meet and highlight disabled candidates at the local, state, and federal level. If you’re running for office, or know of a disabled candidate, let us know, and introduce them to #CripTheVote!

Happy New Year,

Gregg Beratan, Andrew Pulrang, and Alice Wong
#CripTheVote Co-Partners

Saturday, December 16, 2017

12/19: Organizer's Forum on #TaxOnDisability

This information is from the Organizer's Forum. For more about the forum's monthly calls you can email: disabilitymovement@gmail.com or go to their Facebook page for the latest.

ORGANIZERS FORUM: #TaxOnDisability
TUESDAY, DECEMBER 19, 2017
1-2 pm Eastern time, 12-1 Central time, 11-12 Mountain time, 10-11 am Pacific time
Call-in: 1-515-739-1285
Passcode: 521847#
To join through your computer, go to: https://www.freeconferencecall.com/wall/organizersforum

Hear about the new tax plan being considered by Congress and what impact it will have on people with disabilities. Discuss the potential for organizing now and in the future to protect our communities.

Speakers:
Amber Smock, Director of Advocacy, Access Living and Convener, Disability Power for Community Integration

Kim Musheno, Vice President of Public Policy, Autism Society of America and Chair, Consortium for Citizens with Disabilities

Annie Acosta, Director of Fiscal of Family Support Policy, The Arc
Please forward to your lists ASAP.

To give us an idea of who joins our calls, if you are interested in joining on Tuesday, please fill out this quick form! https://docs.google.com/spreadsheet/viewform…

CART: The call will have real-time captioning (CART)! The website where you will be able to view the captioning is https://2020captioning.1capapp.com. Username: forum. Password: forum. Thank you to the National Disability Leadership Alliance for sponsoring the captioning of this call.

If you need additional accommodations to participate in the call, please let us know as soon as possible.

MARK YOUR CALENDARS! The Organizer's Forum has a call on the 3rd Tuesday of each month, 1-2 pm EST (10-11 am PST).

NOTE: We have a listserv for discussion on these issues. It's organizersforum@yahoogroups.com; please go to: http://groups.yahoo.com/group/organizersforum/ and click "Join this group!" We also have our separate announcement-only listserv to allow everyone to easily get notices about the Organizer's Forum, called disabilityorganizing@googlegroups.com. Please email us to be added.We also have a Facebook page! We can use this is a way to continue our conversation beyond the monthly calls. Please "like" Organizer's Forum on Facebook. http://www.facebook.com/profile.php…

Background:
The Organizing Workgroup of the National Disability Leadership Alliance hosts these calls the third Tuesday of every month as a resource for disability organizers, in an effort toward building the organizing capacity of the disability community across the country. They generally follow the format of a Welcome followed by 2-3 experts in a given area speaking for a few minutes on their experiences, advice and challenges. The calls include a 20-30 minute question and answer period.
To ask questions via CART: Sign-in to the Chat function on the right side of the transcript and type your question. One of the call facilitators will read out any questions posted there.
Because we want to maximize the generously donated CART services, we will begin the call promptly at 1pm and end the call promptly at 2pm (eastern time).

Tuesday, November 28, 2017

#CripTheVote Chat: Mental Health, Ableism, & Elected Officials

#CripTheVote Twitter Chat Mental Health, Ableism, & Elected Officials Sunday, December 3, 2017 4 pm Pacific / 7 pm Eastern Guest hosts: @DiorVargas & @NortThreeFifths

#CripTheVote Twitter Chat
Mental Health, Ableism, & Elected Officials
Sunday, December 3, 2017
4 PM Pacific / 7 PM Eastern


The co-partners of #CripTheVote, Gregg Beratan, Andrew Pulrang, and Alice Wong, are thrilled to have guest hosts Dior Vargas and Dustin Gibson join us for a discussion on mental health, ableism, and elected officials.


How to Participate


When it’s time, search #CripTheVote on Twitter for the series of live tweets under the ‘Latest’ tab for the full conversation.


If you don’t use Twitter, you can follow along in real time here: http://twubs.com/CripTheVote
If you might be overwhelmed by the volume of tweets and only want to see the chat’s questions so you can respond to them, check @DisVisibility’s account. Each question will tweeted 5-6 minutes apart.


Check out this explanation of how to participate in a Twitter chat by Ruti Regan: https://storify.com/RutiRegan/examplechat


Check out this captioned ASL explanation of how to participate in a chat by @behearddc
https://www.facebook.com/HEARDDC/videos/1181213075257528/


Introductory Tweets and Questions


Welcome to the #CripTheVote chat on mental health, ableism, and elected officials. We are excited to have guest hosts @NotThreeFifths @DiorVargas with us today! Our chat will be 75 minutes to give enough time for all our questions.

Please remember to use the #CripTheVote hashtag when you tweet. FYI: ableist language and mental health will be part of the conversation so please practice self-care if you become distressed.


If you respond to a question such as Q1, your tweet should follow this format: “A1 [your message] #CripTheVote”


Q1 Community check-in. What a week (actually, what a year). How are you doing, especially in light of the recent vote by the Senate on the tax bill? #CripTheVote #TaxOnDisability

Q2 How do you define ableism? What are some examples of ableism in politics, including media coverage and conversations by and about elected officials? #CripTheVote


Q3 When people casually use ableist language such as ‘crazy’ and ‘insane’ to describe the current political climate or the behavior of politicians, why is this harmful to the disability community, especially people with mental health disabilities? How does this impact POC differently? #CripTheVote


On a similar note, check out this great article from @NOSeditorial by Ivanova Smith on intellectual disabilities & ableist insults/slurs: http://nosmag.org/stop-using-intellectual-disability-as-an-insult-trump/ #CripTheVote


Q4 Ableism is a anti-Black construct. What are some of the ways ableism and racism intersect and how can we confront ableism without being racist?


For more information, check out @talilalewis’s article on ableist language: https://medium.com/@talewis/disability-aint-for-ya-dozens-or-demons-10-ableist-phrases-black-folks-should-retire-d9f8483076e9 #CripTheVote


Q5 There is a lot of frustration and anger with the Administration and in particular the behavior & actions of the President. What are some constructive ways of resisting & protesting that aren’t ableist? #CripTheVote


Q6 Recently, 27 mental health professionals & psychiatrists published a book about the dangers of Trump. What's your reaction to these types of 'warnings' to the public? https://www.newyorker.com/news/news-desk/diagnosing-donald-trump #CripTheVote


Q7 The Goldwater rule is the informal name of a rule by the APA that psychiatrists should not give professional opinions on the state of people they have not evaluated. Why is this rule important? Is there ever a time it should be breached? #CripTheVote  https://www.psychiatry.org/news-room/apa-blogs/apa-blog/2017/03/apa-remains-committed-to-supporting-goldwater-rule


Q8 How does this type of public speculation and armchair diagnoses impact elected officials with mental health disabilities and other people with disabilities who may want to go into public service? #CripTheVote


Q9 The DSM (Diagnostic and Statistical Manual of Mental Disorders) is relied upon to provide common language for diagnostics. Is this a tool that we should be using? If not, why is problematic? #CripTheVote


Q10 How will legislation like the 21st Century Cures Act affect our community? What do laws like this tell us about politicians’ understanding of #MentalHealth & #Disability?  #CripTheVote
For more on the Act and the Murphy bill (which was folded into the Act): https://www.pbs.org/newshour/health/wins-loses-21st-century-cures-act


This concludes the #CripTheVote chat on mental health, ableism, & elected officials. Thank you to our guest hosts @NotThreeFifths @DiorVargas!


Please keep the convo going. A Storify of this #CripTheVote chat will be up shortly.

You can find updates & info about our future chats here: http://cripthevote.blogspot.com/ Our next #CripTheVote will be on 1/21/18 about chronic pain & opioids with guest hosts @msdeonb & @alexhaagaard. Thanks again!

Monday, November 6, 2017

#CripTheVote Chat: One Year Later

#CripTheVote Twitter Chat - One Year Later - November 12, 2017 - 7:00 PM Eastern - Details: http://cripthevote.blogspot.com


#CripTheVote Chat: One Year Later
Sunday, November 12, 2017 - 7:00 PM Eastern

It has been a year and a few days since Election Day 2016. It’s probably safe to say that regardless of your political beliefs, the day’s outcome was a surprise to most of us. It’s also not too much of an ideological stretch to say that the year since has been fractious, disruptive, disturbing, and for many, including disabled people, frightening and threatening.

In this chat we want to give everyone a chance to look back at what their hopes and goals were regarding disability issues and culture before the Election … and also reflect on how they have changed or remained the same since then. Let’s vent, debrief, and support one another. Let’s also try to take a clear-eyed look at what’s actually happening, and discuss how to move forward into the second year of the Trump Administration, and all that comes with it.

How to Participate

When it’s time, search #CripTheVote on Twitter for the series of live tweets under the ‘Latest’ tab for the full conversation.

If you don’t use Twitter, you can follow along in real time here: http://twubs.com/CripTheVote

If you are overwhelmed by the volume of tweets and only want to see the chat’s questions so you can respond to them, check the @DisVisibility account. Each question will tweeted there 5-6 minutes apart.

Check out this explanation of how to participate in a Twitter chat by Ruti Regan: https://storify.com/RutiRegan/examplechat

Check out this captioned ASL explanation of how to participate in a chat by @behearddc - https://www.facebook.com/HEARDDC/videos/1181213075257528/

Questions for the “One Year Later” Chat:

Q1: Community check in: How are you doing, one year after the 2016 Election Day?

Q2: How do you feel about the results from the election in various states this week? If you voted, how did it go and why did you vote? #CripTheVote

Q3: A year ago, what disability issues were you hoping would be on the agenda after Election Day? #CripTheVote

Q4: Which events or trends in politics in the last year surprised, concerned, or frightened you? #CripTheVote

Q5: Has your interest and activism changed this past year? If so, in what ways? What are you doing differently in your activism? #CripTheVote

Q6: In your view, what will be the top 3 disability-related issues for the next three years? #CripTheVote

Q7: What are you planning to do in the runup to the Midterm Elections on November 6, 2018? #CripTheVote

Q8: Why is it important to vote and become politically engaged during midterm elections? #CripTheVote